A JOYFUL NOISE

Yesterday, for some reason, I sat down on my bed and suddenly thought of this person:                                           His name is Warren "Granddaddy" Johnson.  He passed away back in '95.  He and his wife Erma "Grandma" has been part of my life for as long as I can remember and has been to the hospital every time I had surgeries. Erma passed away last year.   Warren would carry me to the prep room, he would hold my hand whenever the nurses would have to do any kind of "thing" to me.   I remember getting surprises after I woke up from surgeries; I remember getting visits.....they both were part of my life.    Yesterday, I just had a sudden meltdown.  ME? at 34 yrs old having a meltdown!!!???!!  YES!  He's k...

These past weeks, (meaning Thanksgiving week and this week) has been filled with medical procedures and doctors visits.  Our family had a pretty laid back Thanksgiving due to my not feeling well at all.  My pain level was sky high and I was extremely worn out all day long, and actually mostly all the rest of Thanksgiving week.  Anyhow, this week, I had THREE UVA appointments.  Unfortunately, I wasn't able to get all of them in one trip, but I got two of them in one trip. Wednesday, I had my usual check-up with my surgeon, Dr. Gampper, to look at my facial tumors all over my head as well (he decided I needed another CAT scan to determine if the tumors are spreading around the interior part of my head, so this is scheduled on Tuesday.....so tired of medical tests!!) Thursday (Dec 4th) was the longest day of my life (felt like it). I had a 9:30 appointment with my Neurologist, Dr. Leone  It was such an incredible and encouraging visit....